Need Help? Find Help Now

Tics and Tourette's syndrome

Tourette syndrome (TS) is a neurological condition characterised by sudden, repetitive movements or sounds. It is a type of chronic tic disorder (CTD) and is defined by having both multiple motor tics and at least one vocal tic. While all individuals with Tourette’s experience tics, not all tics are indicative of Tourette’s.

Multiple studies find people with Tourette’s and tics have a substantially higher risk of suicidal thoughts, attempts, and death by suicide than the general population.

A person with tourettes talks to a friend

Tourette’s syndrome is a neurodevelopmental condition marked by motor (movement) and vocal (sound) tics. These tics typically persist for over a year and may continue throughout life. Tics are involuntary, rapid muscle movements or sounds, such as eye blinking, shoulder shrugging, sniffing, throat clearing, or other involuntary noises. While swearing or inappropriate language is commonly associated with Tourette’s, it affects only a small portion of those with the condition. Some people may develop tics for a short period of time.

Various factors, including stress, excitement, or fatigue, can trigger tics or exacerbate Tourette’s tics. For those living with tics or Tourette’s, the social and emotional challenges can lead to feelings of frustration, anxiety, and isolation, especially when misunderstood or unsupported. These challenges, alongside bullying, societal stigma, and a lack of accommodations, often contribute to emotional distress and mental health difficulties.

300,000+

people (adults and children) in the UK have Tourette’s syndrome

4x

more likely to die by suicide, people with Tourette’s or tics face a significantly higher risk

1 in 100

children in the UK are diagnosed with Tourette’s syndrome or tics

Real stories

Billie Eilish

Billie Eilish, singer

Billie Eilish was diagnosed with Tourette’s syndrome when she was eleven years old. She has shared that some tics have gone away since she was diagnosed, but there are still some she experiences regularly.

“I never don’t tic at all, because the main tics that I do constantly, all day long, are like, I wiggle my ear back and forth and raise my eyebrow and click my jaw … and flex my arm here and flex this arm, flex these muscles. These are things you would never notice if you’re just having a conversation with me, but for me, they’re very exhausting.”

Lewis Capaldi, singer

Scottish musician Lewis Capaldi lives with Tourette’s Syndrome. Capaldi’s condition, marked by shoulder and leg twitches, is notably influenced by his emotional state, which can be triggered by exhaustion, nerves, excitement, joy, anxiety, or stress.

Capaldi raises awareness and understanding around Tourette’s and nurtures a sense of community with those who share the condition. He has shown that whilst life may not be easy, people with Tourette’s can go on to achieve great things.

Photo by Harald Krichel
Conor talks about Tourette's Syndrome

What is it like living with Tourette's syndrome?

In this short documentary, Conor describes what life is like living with Tourette’s syndrome. He shares his struggles with mental health and some of the ways he has learned to live with his tics.

Watch on YouTube.

Are you struggling?

If you are experiencing suicidal thoughts, know that these feelings can pass and support is available. It can be difficult to talk about them, but there are steps you can take to stay safe.
 
Reach out for support: Connecting is a lifeline. Share what you are going through with a family member, trusted friend, or therapist. Talking can sometimes feel difficult, especially if you feel ashamed of your tics or worried about being misunderstood. If speaking feels hard, try writing your feelings down in a text or message, or use a helpline with text or chat options.
 
Make a safety plan: Create a personal plan you can use when things feel overwhelming. Include trusted people you can contact, safe places you can go, and calming activities that help, such as music, creative hobbies, grounding techniques, or spending time somewhere quiet. Downloading the Stay Alive safety plan can give you extra tools to keep safe.
 
Look after your wellbeing: Simple things like eating well, exercising, resting, and doing calming activities can improve mood and help manage stress. Building routines that reduce fatigue can also make tics easier to cope with.
 
Seek professional help: Many people with Tourette’s syndrome or tics also experience anxiety, OCD, or depression. Speaking to a professional who understands Tourette’s can make coping easier and reduce distress. Support such as therapy, mindfulness, or medication can make a real difference. The resources below offer further guidance.

Stay Alive app

Download our NHS-recommended app if you are struggling with suicidal thoughts or are concerned about someone. There are over 800 resources to help you stay safe for now. 

Contact your GP

They will help you get support from the right services and will sometimes take appointments over the phone.

NHS

Information about Tourette’s Syndrome, its symptoms, causes, treatment options, and support resources.

Tourette's Action

Offering a range of resources, support services, and advocacy to help people with Tourette’s syndrome.

The Brain Charity

Providing advice, guidance and practical support for those living with a broad range of neurological conditions, including Tourette’s syndrome.

Enhanced Safety Plan

Our Enhanced Suicide Safety Plan and Communication Toolkit are designed to be completed when you’re feeling stable, so you have a clear, supportive resource to refer to in times of crisis. This tool includes emergency contacts, helpful prompts, and practical steps to guide you through difficult moments, offering a sense of safety and control. By filling out the plan in advance, you can feel more prepared and confident in reaching out for support when needed.

Are you supporting someone?

Providing understanding, support, and appropriate resources can help reduce issues associated with Tourette’s syndrome and tics, ensuring individuals feel valued and empowered.

Educate yourself and others: If you learn more about Tourette’s and tics you can respond in a supportive and understanding manner. Teach them to explain it to others in an unapologetic way.

Active listening: Every person is different so practise active listening and try to understand things from their perspective. If you are concerned about them, gently encourage them to talk openly about their feelings, and ask direct, compassionate questions about their thoughts of self-harm. It’s important not to dismiss their emotions, even if they often change. Remind them that what they are feeling is real and valid, and that help is available.

Be patient: Remember that tics are involuntary. Avoid staring at or commenting on tics or telling them to stop, as this can make the person feel self-conscious and will increase their anxiety and shame. 

Reduce stress and anxiety: Stress, anxiety, and fatigue can worsen tics. Encourage relaxation techniques like meditation, mindfulness, and creative hobbies. Encourage regular exercise, a balanced diet, and adequate sleep, as these promote overall well-being.

Create structure and routine: Focus on finding solutions together that support. Try to establish a consistent and calm daily routine to reduce stress.

Stay Alive app

Download our NHS-recommended app if you are struggling with suicidal thoughts or are concerned about someone. There are over 800 resources to help you stay safe for now. 

NHS

Information about Tourette’s Syndrome, its symptoms, causes, treatment options, and support resources.

Tourette's Action

Offering a range of resources, support services, and advocacy to help people with Tourette’s syndrome.

The Brain Charity

Providing advice, guidance and practical support for those living with a broad range of neurological conditions, including Tourette’s syndrome.

The ADHD Foundation

Expert-led training for professionals offering practical strategies across a wide range of subjects and many areas of neurodivergent differences.

The ADHD Foundation

A range of resources for parents, carers, and professionals on supporting neurodivergent individuals.

Find advice and sources of support for other neurotypes.

Learn more about how to have a conversation with someone at risk of suicide.

Resources

Share this page

Did you know 1 in 4 people will have suicidal thoughts at some point in their lives?

Donate today and help us save more lives from suicide.